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Putting Up With POTS
A Blog About Life With Chronic Illness
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jdsantacrose
Aug 19, 20205 min read
How I've Experienced Medical Sexism
Early in 2016 I found myself strapped to a table waiting to be tilted until I passed out. It sounds like a medieval torture device but it...
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jdsantacrose
Aug 10, 20204 min read
Chronically Ill People Are Not Disposable and Semantics Matter
I keep seeing this thing in medical discourse about risks, specifically risks of death. It’s phrased something like this: “most of the...
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jdsantacrose
Mar 11, 20203 min read
This Is How Chronically Ill People Feel All The Time
COVID-19 was recently declared a pandemic by the World Health Organization (WHO) and many states and counties are limiting gatherings of...
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jdsantacrose
Mar 7, 20202 min read
In The Kingdom Of The Sick
In The Kingdom Of The Sick by Laurie Edwards (2013) is a social history of chronic illness. Edwards explores both historical and modern...
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jdsantacrose
Jan 15, 20203 min read
Sometimes We Face Setbacks
Setbacks can be incredibly frustrating. Everyone has experienced a setback of some sort in their lives. Sometimes it’s a lost job, or an...
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jdsantacrose
Sep 22, 20193 min read
10 Activities To Do With Good Posture
Approximately 10% of adults at any given time are experiencing neck pain. I have personally had neck pain for about 3 years now, since a...
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jdsantacrose
Apr 25, 20194 min read
Why I Don't Want To Be Exposed To Your Acute Illnesses
I’ve spent much of the last 8 years in 'the land of the sick.' 8 years ago is when I started having chronic illness symptoms that greatly...
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jdsantacrose
Mar 13, 20193 min read
A Progress Report
It’s been over a month since I posted last. I started a new job and I’ve been devoting most of my energy to that. A few weeks ago I...
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jdsantacrose
Feb 3, 20194 min read
My Best Immune Boosting Tips
This time of year it seems like everyone I talk to is either sick or has been around someone who is sick. As a person with chronic...
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jdsantacrose
Jan 27, 20195 min read
The Basic Symptoms Cascade In POTS
I’ve found when I meet people who are unfamiliar with POTS they can get hung up on what causes the symptoms I’m talking about. I think of...
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jdsantacrose
Oct 15, 20182 min read
Why the Medical System Doesn't Work For Us
We in the chronic illness community are at the mercy of a system that wasn’t built for us and isn’t equipped the handle us. The current...
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jdsantacrose
Oct 7, 20185 min read
5 Extra Roles Of A Chronic Illness Patient
As a chronic illness patient I’ve had to take on several roles that I am frankly not qualified for. Every chronic illness patient I’ve...
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jdsantacrose
Sep 16, 20183 min read
Why Getting Diagnosed Is A Good Thing
When dealing with chronic illnesses as opposed to acute illness the rules change. When you are acutely ill you get sick, get diagnosed,...
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jdsantacrose
Aug 25, 20183 min read
The Complicated Grief Process of Chronic Illness
Most people think of grieving processes as something that follows the death of a loved one, but there are lots of other reasons to...
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jdsantacrose
Jul 27, 20182 min read
Thinking in Terms of Resources
I’ve often heard people lamenting the things they took for granted before becoming chronically ill. It honestly feels cliche to say it,...
19 views1 comment
jdsantacrose
Jul 16, 20182 min read
Introduction
Hello and welcome to my blog “Putting Up With POTS.” This blog was started in the hopes that it could be a resource for people living...
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